This article was updated on Sept. 13, 2017, with new information about the author and her connection to a drug company.
It’s easy to find fault with ads for prescription drugs, as STAT recently did. Few people get to hear about the good that can come from these ads. For some people — including me — they provide the information and motivation to take life-saving action.
In 2008, I was living a wonderful life after having retired from a long career working as an elementary school teacher, principal, and consultant. I was playing golf, reading, rescuing dogs, building miniature doll houses, and volunteering at a hospital near my hometown of Temperance, Mich. In preparation for minor foot surgery, I had some blood tests. They revealed that I had chronic hepatitis C.
As I soon learned, chronic hepatitis C is a leading cause of advanced liver disease, liver cancer, and liver failure, and is responsible for more deaths each year in the United States (15,000) than HIV.
I can’t say for sure how I was infected with the hepatitis C virus. It most likely happened in 1978, when I got a blood transfusion during surgery for cancer. I became extremely sick following the transfusion; tests showed that I had non-A, non-B hepatitis — now known as hepatitis C. Once I recovered, I had no other symptoms and didn’t think about the issue again for almost 30 years.
When I was diagnosed with chronic hepatitis C in 2008, many people had never heard of it; many still haven’t. There was a culture of secrecy about it, just like there was with HIV/AIDS. That secrecy fosters shame and misunderstanding. Both contributed to my long-term boyfriend’s decision to abruptly end our relationship after learning of my diagnosis.
Determined to defeat hepatitis C, I started a yearlong course of treatment with a drug called interferon. It caused awful side effects: thinning hair, severe weight loss, nausea, vomiting, eczema, and breathing problems. Even worse, it didn’t work to foil the virus. My doctor recommended that I stop treatment and hope for new drugs to be developed.
They eventually came along. But I didn’t know about them until I saw a TV commercial last year talking about hepatitis C. In fact, I saw these commercials many times. At first I changed the channel when they came on. They reminded me of my experience with interferon, and I vowed I would never again accept such terrible side effects for the possibility of a cure. Eventually, though, the commercials nudged me to do something.
I went back to my doctor and learned that new medicines with much higher cure rates and far fewer side effects had become available. One month after starting to take one of these new drugs, the amount of hepatitis in my blood had dropped way down. I was experiencing nowhere near the side effects of interferon — I needed to take a short nap every day and experienced some diarrhea, but was able to live a normal life. Two months later, the hepatitis C virus couldn’t be detected in my blood. My doctor told me I should consider myself cured.
I strongly believe that if I hadn’t seen TV ads about chronic hepatitis C and new drugs to treat it, I wouldn’t have done anything to protect myself against it. Those commercials raised my awareness of the disease and gave me the courage to try again to beat it. I’m sure I’m not the only person they have helped.
Deborah Clark Dushane, a retired educator, is enjoying a hepatitis-free retirement in Temperance, Mich. This article originated as a “thank you” letter she wrote in December 2015 to Gilead Sciences, a pharmaceutical company that makes drugs to fight hepatitis C. She was asked to turn it into an op-ed by W20, a PR firm for Gilead. Dushane wrote the article, which she said was lightly edited for grammar by W2O. She received no compensation for the piece. After it was published, she appeared on several local TV stations. Gilead then paid for her to fly to California to learn more about the company and its products.
I’m sorry–boo hoo, ad companies, I don’t think you should get to make ads more colorful, musical, false just so you can be more creative. Choosing a high powered drug can not only have side effects but serious consequences for the rest of someone’s life. I’m okay with ads but seriously, drug companies are dangerously losing sight of the patient. Just read the story about Lilly, and click on the company blurb and read their beautiful mission statements. Lots of trigger words like innovation, profit, etc. but not once do they mention person or patient. Just look at the ACA arguments right now, politicians are looking at profits and bribes, not human beings.
I am so happy you got cured from hepatitis C. My mom did not has the same chance 3o years ago. At 64 she was diagnosticed with liver cirrhosis from a hepatitis no A no B, and in only six months, she passed away.
Her sister has HC too from a blood transfusion, but she lives in USA; she had the same treatment like you. I remember her walking like a zombie from ribavirin side effects.
Finally, she found a doctor that gave her a new medicine and in the last blood test, they did not find the HC virus. I don’t remember the name of that drug now. She is doing very well at 89 .
Sorry for my English.
what is the name of the drug that saved you from Hep C?
Did you mention the $90,000 cost for the Sovaldi cure?
Care to tell us the name of the drug that worked for you?
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