The dizziness didn’t much worry Neil Fachon. Neither did the double vision. He was recovering from concussions he had sustained while playing sports, and the symptoms weren’t enough to keep him from his engineering classes at Northeastern University in Boston.

Then came some inexplicable struggles with handwriting and swallowing.

Doctors scheduled an MRI. On March 4, his life came unhinged.

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Oncologists at Massachusetts General Hospital told Neil, 20, that he had a rare and incurable form of cancer known as DIPG, or diffuse intrinsic pontine glioma, which attacks the brain stem and usually kills its victims in a year or less.

The diagnosis dropped the college sophomore into a maelstrom. Doctors laid out one course that seemed of little use. Herbalists recommended dietary changes. Neil and his family grew excited about an experimental therapy offered by a renegade Texas physician, Dr. Stanislaw Burzynski, and he flew to Houston to get infusions — but got them for just for a single day before federal regulators abruptly ordered the treatments to stop.

Soon, Neil’s family was suing the Food and Drug Administration for the right to keep trying the new therapy. Late last week, the Fachons won, and Neil resumed the treatments.

The family drama comes amid growing tension — in Congress and across the US — about how far terminally ill patients can, and should, go in search of a miracle.

The FDA tries to protect patients from unproven remedies that might do more harm than good. But when a child has an incurable brain tumor, does the same cold calculus of risk and benefit apply?

“Neil wanted to be part of this research,” Wendy Fachon, Neil’s mother, told STAT. “What did he have to lose — his life?”

For his part, Neil said in an interview Tuesday that he has been focusing on staying upbeat, even amid the “crazy stress” of fighting the FDA for the right to try the infusions. “I’m thinking ‘What can I still do?’” he said. “I can hold my head up. I can keep the most positive spirit I can, and help my parents get through this the best they can. And that’s precisely what I intend to do.”

Neil Fachon
Neil Fachon after having a catheter inserted in his chest in April. Courtesy Wendy Fachon

No time to wait

Modern medicine is a brutal battlefield: hope spars with fear. Risk with caution.

It’s the FDA’s job to ensure that treatments work, that trials are conducted safely, that potential for gain outweighs potential for harm. But regulators are under constant pressure from patients — and, increasingly, politicians — who feel the agency moves too slowly, demands too much data, and won’t let dying patients take a chance on experimental drugs.

Just this month, for instance, mothers of children with Duchenne muscular dystrophy, which is fatal, raged against regulators who have delayed approval of a drug for the disease. Parents call the treatment promising, but the FDA has expressed doubts about the drugmaker’s data, based on a 12-patient study.

“We’ll never have a perfect drug, but we’re trying to find a way to get the best of both worlds: minimize risk and maximize benefits,” said Karen J. Maschke, a political scientist at the Hastings Center and editor of the journal IRB: Ethics & Human Research.

“It’s a hard conversation to have,” Maschke added. “But we need to keep trying to have it, and have it ongoing so we can have it at times we’re not in crisis.”

The Fachons didn’t have the luxury of waiting for a good time to talk.

They knew that mainstream medicine had little to offer Neil beyond radiation to tamp down the tumor and perhaps buy him a few more months. Neil’s oncologists also said they could biopsy the tumor to see if he might qualify for experimental treatments. But a biopsy on the brain stem can be risky.

As they considered clinical trials, Wendy Fachon plunged into consultations with practitioners of naturopathic medicine.

Neil was soon eating heaps of kale and downing an herbal concoction. He took vitamins and high doses of curcumin, a substance in tumeric, prescribed by a woman with a degree in naturopathic medicine who studied with Cherokee elders.

The family had known about Stanislaw Burzynski, who promotes an experimental treatment made from amino acids and peptides that he says cancer patients lack. Burzynski has tangled for decades with federal and state regulators; they have accused him of unethical conduct, of sloppy record keeping — and of repeatedly jeopardizing his patients with risky treatments and drug overdoses.

Despite his record, the Food and Drug Administration authorized Burzynski to run a clinical trial of his treatment on a brain stem tumor. The clinical trial meant the family would not have to pay for the treatment, which can run in the tens of thousands of dollars and is not covered by insurance.

In mid-April, Neil became the one and only patient enrolled.

The Fachon family, who live in East Greenwich, R.I.,  had read critiques of Burzynski’s treatment on the websites of the National Cancer Institute (which says there’s no known benefit), and Memorial Sloan Kettering Cancer Center (which says it could be useful as a supplemental therapy for breast cancer). They’d read testimony, too, from Burzynki’s many impassioned, though less credentialed, fans. Neil and his sister, Evie, a senior at Northeastern, had even held a Skype conversation with a woman in Argentina who credited Burzynski with curing her fatal brain tumor.

“Neil wanted to be part of this research. What did he have to lose — his life?”

Wendy Fachon

So Neil and his parents flew to Houston, where they were later joined by Evie. There, Neil had an intravenous catheter inserted in his chest; it delivers the treatment every four hours, around the clock.

Camped out in hotel rooms in Houston, the family passed the time playing board games such as Settlers of Catan, Carcassonne, and Pandemic. More recently, Neil has spent more time on the computer, writing about his experience.

“He’s doing OK,” his mom said last week. “He’s very tired. We’re all very tired. But he does feel he’s improving.”

Everyone was shocked when the FDA abruptly ordered the trial shut down, without making public the reason. The agency reversed course just as abruptly, and just as mysteriously, last week, after the Fachon family filed their lawsuit. A federal court order dated May 27 indicated that the FDA would let Neil Fachon continue his therapy.

“I can’t put into words the stress and the mental trauma that the FDA put us through,” Wendy Fachon said. “How they treated us was absolutely abysmal.”

The FDA declined to comment. Burzynski also turned down requests for interviews.

Clinical trials do get stopped midstream occasionally, for various reasons, but Richard Jaffe, an attorney who represented Burzynski for years, said in general such action is taken only when there’s “a strong likelihood” that a participant in the trial will get harmed.

Jaffe has sued Burzynski for nearly $250,000 in unpaid legal fees, but says he still believes in the doctor and his experimental blend of compounds normally found in blood and urine.

“It may not be a perfect treatment and it’s not approved yet for marketing, but there’s some evidence” of benefit, Jaffe said.

Fachon said she understood the side effects of the experimental treatment to be minimal: imbalances in sodium or potassium. “But if you’re aware of that, and you stay away from salty foods and drink lots of water and eat bananas and take potassium supplements, you’re fine,” she said. “I think it’s brilliant.”

Neil, too, said he felt he was in good hands. Asked how he liked Dr. Burzynski, he responded: “I love him.”

Burzynski has “a twinkle in his eye,” Neil added. “But he cares very deeply about what he’s doing. He has a very real intent to help people.”

A doctor under fire

Burzynski has been promoting his experimental treatment, which he calls “antineoplaston therapy,” since the 1970s. He lists a string of scientific papers on his website, but he hasn’t published any data from randomized controlled trials testing the efficacy of his treatment against placebos or more conventional therapies.

Antineoplaston therapy is not approved by the FDA for the treatment of any illness.

Yet Burzynski pitches it as a “cutting-edge,” personalized cancer treatment. His clinic’s slogan: “Tomorrow’s cancer treatment today.”

Two documentaries about the doctor paint him as a visionary persecuted by the medical establishment. Dr. Mehmet Oz, the medical-doctor-turned-TV-personality, has promoted him. But regulators have long been skeptical.

In the 1980s, the Texas Medical Board reviewed Burzynski’s use of antineoplaston therapy on about 60 patients to see if it was safe. The results were inconclusive. In 1988, the board accused him of violating the Medical Practice Act, in part because he had given patients the therapy after the FDA had put a hold on clinical trials. A Texas trial court later threw the case out. The board has called for suspending his license for violating medical standards.

The FDA has come down on Burzynski, too. Of particular interest to the agency: the clinic’s Institutional Review Board, which is charged with approving the protocols of research trials and protecting patient safety. The FDA concluded in 2008 that the board didn’t do enough to minimize risk to trial participants, failed to ensure patients gave informed consent, and otherwise neglected its responsibilities.

Strikingly, the FDA also said that when a member of the review board had a conflict of interest, non-IRB members were allowed to step in as substitutes. FDA regulations prohibit that practice. The FDA sent several warning letters but did not shut down the clinic.

In 2012, a young boy died in one of Burzynki’s trials, and both the Texas Medical Board and the FDA again investigated. The results were troubling for Burzynski.

In a harsh warning letter to Burzynski, dated Dec. 3, 2013, the FDA said the doctor had “failed to protect the rights, safety and welfare of subjects under your care.”

Dr. Stanislaw Burzynski has “failed to protect the rights, safety and welfare of subjects” under his care in clinical trials.

Food and Drug Administration

The agency also noted that Burzynski had failed to report adverse reactions that patients suffered in the clinical trial, as required by law, and neglected to obtain informed consent, especially regarding additional fees for the treatment. He was also cited for failing to maintain accurate case histories — which are crucial to figuring out whether a treatment actually works.

And that wasn’t all. “Overdoses have been reported to you on a weekly basis during your Monday, Wednesday and Friday staff meetings. There is no documentation to show that you have implemented corrective actions during this time period to ensure the safety and welfare of subjects,” reads one federal inspection report from 2013.

At the same time, the Texas Medical Board revved up its pursuit of the Houston doctor.  In November 2014, the board filed another case against him, accusing him of violating ethical standards and the standard of care, among other charges. That case is pending.

Through it all, his fans have remained loyal. Rita Starr, who said the doctor successfully treated her mother in 1994, cofounded the Burzynski Patients Group to rally support. The doctor is now treating her husband for lymphoma. And she said she “personally knows” patients who have overcome brain malignancies after being treated by Burzynski.

Starr visited the clinic last week, gave Neil Fachon a new backpack to carry his treatment supplies in, and showed him photos of Burzynski patients who have survived cancer.

“The family knows they’re in a good place,” she said.

Fachon family
Dean, Evie, Neil, and Wendy Fachon at the Burzynski clinic last month. Courtesy Wendy Fachon

‘One of the worst tumors’

DIPG “is one of the worst tumors we have in pediatrics,” said Dr. Peter Manley, who directs the pediatric neuro-oncology outcomes clinic at the Dana-Farber Cancer Institute. There are about 300 cases a year in the US, mostly in  younger children.

The standard treatment is radiation to the brain stem. Manley said patients usually improve as a result, but the tumor tends to grow again within six to nine months. Most patients die within a year of diagnosis.

Research on alternative therapies is actively underway, however — including a clinical trial at the Translational Genomics Research Institute and the University of California, San Francisco, and another at St. Jude’s Children’s Research Hospital in New York.

In addition, Manley said researchers at Memorial Sloan Kettering and Weill Cornell Medicine are studying methods of injecting chemotherapy directly into the brain stem. The idea is to overcome a big weakness of standard chemotherapy — that it often does not effectively cross the blood-brain barrier.

“We’re hoping that we’ll learn more about these tumors and target them directly,” Manley said.

“What can I still do? I can hold my head up. I can keep the most positive spirit I can. … And that’s precisely what I intend to do.”

Neil Fachon

Wendy Fachon, who works for a magazine called Natural Awakenings Rhode Island, said she and her husband, Dean, a freelance writer, considered other clinical trials, but none of them appealed as much as Burzynski’s, given how many people had testified about positive experiences with the Houston doctor. She also continues to pursue herbal and naturopathic remedies.

Dr. Naoki Umeda, a staff physician at the Cleveland Clinic’s Center of Integrative and Lifestyle Medicine, said herbal treatments can effectively support — but should not replace — traditional cancer treatments, because they can boost the body’s immune system.

Remembering to smile

As the drama has unfolded, Neil Fachon has remained positive.

It comes easily to him.

In high school, Neil spent his summers in a student leadership program in Massachusetts — the last two as a volunteer, training the younger participants to hold fundraisers in which they read a particular book to elementary school students.

The book was “The Jester Has Lost His Jingle,” written by David Salzman, who died of Hodgkin’s lymphoma in 1990 at age 22.

In it, a jester regains his lost humor with the help of a girl who is battling brain cancer.

After Neil’s diagnosis in March, friends from his program sent him a copy of the book and a jester doll.

Neil said he wants to give copies to two young patients with DIPG who recently checked into Burzynski’s clinic. He wants them to know, he said, that “no matter how bad it seems, how down they are, there’s always, just around the corner, a smile.”

“Especially for kids going through this kind of thing — myself included — it’s something we need to be reminded of, because the whole situation can become so oppressive at times,” he said. “So to have that message of positivity and laughter and love for life … that’s the message I’m trying to bring to people.”

Meanwhile, Wendy Fachon said she is considering supporting legislative initiatives that might help patients in similar situations gain more control over their medical treatment. She has already heard of at least one other child who was blocked by the FDA from joining her son on Burzynski’s trial.

“My heart goes out to those families, because I know what it’s like,” she said.

As for Neil’s future, she said: “We are very optimistic for his recovery. His story can’t end now. I think his story is just beginning.”

Neil agreed.

“I’m feeling pretty good,” he said. “I don’t plan to stop feeling pretty good any time soon.”

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  • The hypocrisy of the FDA is well recognized. Patients & parents should have the right to choose their own treatments. Meanwhile, the FDA backs vaccines which have never been tested and which contain mercury, aluminum, and Glyphosate to be pumped into infants & children while vaccine manufacturers are the only manufacturers who can not be sued for murder or harm. While Americans have exponentially rising rates of disease & death & are at the BOTTOM of the list of industrialized nations for health, longevity & infant survival, Americans pay double and more what other nations pay. But the good news is that the profits soar in the US. Medical treatment & War are our two big money makers while we are the sickest. So a physician like Dr Burzynsky who tackles a lethal disease like neuroblastomas which is known as
    death sentence diagnosis, gets persecuted. Instead of praising him for the cures he accomplished, they persecute him. The FDA should be disbanded. All it does is rubber stamp products that the manufacturers produce. Talk about rackets. Dow used cancer causing Teflon (developed by the the gov for coating missiles to reduce friction) for 30 years knowing that it caused cancer. A couple was just awarded two billion dollars because they sprayed Roundup and developed non-Hodgkin Lymphoma. Roundup is still being sold in the US, and the ingredient (glyphosate) causing cancer gets mainlined into infants and adults. The FDA protects profits…. not people. This post probably will be taken down. Censorship is alive and well.. ..even if we aren’t.

  • First time I read anything on this doctor. I never commented on him before. My friend just e-mailed about him today.

  • I had adnexal Lymphoma in 2013. I received chemo and radiation. Still doing ok. But I welcome research for cures. This doctor has a very good reputation for treatments. I think this is good.

  • Folks, before you get too far into this article, please note the date it was published. Then scroll down through the comments: Neil died in 2017, less than a year after this article was published. Consider your response with this information in mind, please. No sense putting your hopes in something that does not exist. A lot of people are getting their hopes up without having all the information. Some people with cancer get well. Sadly, many don’t. My brother, after almost 6 years with stage 4b cancer in lung and brain, and against all odds, is considered cancer free. BUT he went through every known treatment, including immunotherapy. He had a great oncologist and terrific support from friends and family. He did use supportive herbal treatments to help with side effects. But no, not this Dr B, and given my brother’s inclination to research EVERYTHING, I’m sure he knew about him.

    I did, having come across some literature about his research. I wish I could believe in Dr. B. But sorry, too many questionable things about his research, too little data, very poor data recording, too much secrecy. In some cases, there is no way to even begin to evaluate if his some of his patients even had cancer, let alone if his treatments (whatever they are) were effective.

    It’s hard when a patient is very young. One wants so much to make it possible for that young person to live, to experience life as an adult. When that doesn’t happen, it is hard to accept. And I wonder if by keeping this article alive without putting an addendum on the article itself, is Stat being unfair to those people who read the article and some of the (clearly planted) testimonials and don’t realize that long before they read the article the young man had died?

    • To the Editor:
      With Eugene “Neil” Fachon’s passing on February 19, 2017, critics of Dr. Burzynski may be anxious to see if they’ve acquired new allies in their endless quest to discredit his work. Are we amongst those whose dashed hopes fester into anti-Burzynski vitriol? The answer is, “No.” Please let us explain:
      When we first learned on March 3 of last year about Neil’s horrible illness, Diffuse Intrinsic Pontine Glioma (DIPG) and the experts at Mass General and Dana Farber told us his prognosis: three months to live without any treatment, six months if one of their proffered options were taken. We knew we were up against the worst nightmare of our lives. We always prayed for a miracle cure, but from the start we realized there might be no silver lining. All we knew for sure at the time was there were lots more questions than answers. Amongst them, was adding a few months to Neil’s life the best he could hope for?
      Armed with little more than determination, we began researching every treatment option we could find, from taking standard radiation or performing a biopsy to typematch the tumor to drugs that might have effect, to clinical trials using immunotherapy or trying “convection-enhanced” chemo-therapy which bypasses the blood/brain barrier to deliver chemo directly into the tumor. In addition, there was a clinical trial being conducted by the Burzynski Clinic using “Antineoplaston [ANP]” therapy. ANP therapy was invented and pioneered by Dr. Stanislaw Burzynski in the 1980s, but it is still considered experimental by the FDA.
      Of the methods researched, the immunotherapy trials looked promising but were just in their infancy. Convection-enhanced chemo-delivery seemed logical, but no drug has yet proven particularly effective against DIPG. Each of these trials also required their patients take a course of standard radiation to “stabilize” the tumor prior to being given any experimental treatment. Neil was flatly opposed to radiation. To him, treating one cancer by a means which significantly increased the risk of getting another cancer was anathema. The only treatment with significantly better outcomes than “standard” care – even so these results were “anecdotal” – was the ANP therapy being offered in the Burzynski Clinic trial. And no radiation was required. We located a DIPG survivor who had been treated by Dr. Burzynski, and Neil spoke with her personally. This simple conversation cut through much of the negative commentary that hounds Dr. Burzynski on the Internet.
      When Neil began the clinical trial at the Burzynski Clinic in April of 2016, he was brimming with positive energy and optimism, important “ingredients” when treating any disease. Sadly, his optimism suffered a severe blow when the FDA attempted to halt his trial retroactively. His story made national news when he fought in court for his right to maintain treatment. His lawyer, Kathleen Hagerty, won the battle, but it came with a steep cost to the momentum of Neil’s treatment as well as heaping unimaginable stress on a young man already engaged in the Fight of his life. The role stress plays in cancer is well documented. Nonetheless, Neil soldiered on with good humor, full of Love for Life, Family, Friends and our shared World.
      We kept detailed records throughout Neil’s course of treatment. His MRI’s were also reviewed by an independent radiologist: We were told Neil’s tumor increased in size through May of 2016. Thereafter, it remained relatively “stable,” well past the date when he was predicted to die if he had taken “standard” care. Before Neil was hospitalized in late November for hydrocephalus, his tumor may actually have begun to shrink, but we’ve learned there is a great deal of “art” to reading MRIs, so we cannot say for sure if any shrinkage occurred. What is clear is Neil outlived his prognosis by several months, and for all but two of these months he had a good quality of life. By this measure alone, he had a positive, objective clinical response to ANP therapy. While on treatment, Neil also reported feeling a “waterfall” in the back of his head. Something was happening. When Neil was refused access to ANP treatment during his hospital stays, he would sometimes point to the back of his head and shrug with his eyes, as if to say, “We’re losing time.”
      So rather than holding any grudge against Dr. Burzynski, we find ourselves wondering what might have happened had ANPs been fully embraced and developed by mainstream medicine years ago. By now they would be on their 4th or 5th generation of development. How much more effective might they be we can only imagine. And due to mainstream medicine’s prolonged rebuff of Dr. Burzynski, he has been deprived of a network of actively involved colleagues who can administer ANPs and oversee patient care. For us, in the last months of Neil’s life, this could have made a big difference. No, we do not fault the doctors who stepped up to help us, but where ANPs are concerned, our lay-expertise exceeded theirs – not optimum. Sadly, mainstream doctors in general held Neil at arms length, happily treating secondary issues, but trying mightily to avoid any appearance of condoning, let alone endorsing Dr. Burzynski or his treatment of Neil’s DIPG. This left us flying by the seat of our pants for much of the time. The Burzynski Clinic was ever on standby to offer recommendations, but not having an actively interested and knowledgeable expert on hand was costly.
      Lastly, speaking directly to Dr. Burzynski’s critics who call him a scam artist and claim he lures people in with false hope and then takes their money, try paying for standard chemo or radiation out of pocket. It’s very expensive. Dr. Burzynski does not have the benefit of being covered by insurance. As for failing to cure all his patients, show us the oncologist who has. Dr. Burzynski offers hope, but no guaranties. He often works with patients who have been given up as lost causes. Our son was basically one of those. No, Neil ultimately did not survive, but he did much better than any mainstream expert said he could. To us and to him, that meant a lot. He lived with real hope (What is hope if not standing steadfast against daunting odds?) and he had a chance to convey heartfelt farewells to his family and friends.
      Trying to be as objective as we can in the wake of our loss, credit should be given where credit is due. Instead of vilifying Dr. Burzynski because he is unorthodox, we wish to thank him and his Clinic from the bottom of our hearts for the extra time Neil had to live. Dr. Burzynski’s hope and optimism dwarf the stature of those who want nothing more than to tear down his work. That he remains indomitably optimistic after so many years of abuse is mute testament to his character. He buoyed us when others preached hospice. In a more perfect world, Neil might still be alive and demonstrably beating his cancer. That is the world we hope Neil’s legacy will help build.

      Dean & Wendy Fachon
      East Greenwich

    • Neshobe I trust Dr Burzynski but I don’t anyone who writes “truth” anonymously. As a psychologist, I know there is an ultimate goal here. I am not affiliated with Dr Burzynski. I do give you that the acknowledgement of the young man’s death should have been listed. But with the disruption of treatment caused by the FDA, who knows if there could have been a different outcome. And what is the death rate in general ?

    • If what you wrote in-fact is true, what are you posting about ? Many cancers are a death sentence. Even a FDA approved drug for one form of cancer needs years more trials for another cancer. Most patients are dead before a Good Doctor would be able to get treatment. My daughter is stage-4 terminal breast-cancer. Her Good Doctor wrote prescriptions for increasing amount of FDA approved drugs. He also wants monthly pet/ct scans. She pays $900.00 monthly towards her employer top choice Cigna healthcare. Cigna declined both request and sees it as unnecessary. Doctors cannot even treat patients, because the lunatics run the entire country. We have seen Dr. B and are waiting for additional information. I have found several patients from years back and talked with them. They fully believe Dr. B. saved their lives. One of the patients tried to sue his insurance company for not paying Dr. B. Your can find the case online in the Ohio court records. His HMO told him, they were out of treatments for his double-melomana and he had around six-months to live. He sold his business and went to Texas with his wife. That was in 2000. I talked with him about a month ago. He is disabled from the radiation poisoning and chemotherapy, but grateful to be alive. I also am looking for more people who have had their lives extended by DR. B. A lot of folks are very personal and just get on with there life. And with the campaign to discredit his work ! good information is taken down.
      And your post makes little sense, because Neil died ? It’s like your saying he would be alive today had he of followed “The Standard of Care”
      Sadly, many of us will hear that term in our life. To simplify the words meaning! If you shop in a Walmart in NYC, LA, TX, or anywhere expect them all to be the SAME. But the filthy rich need not be affected, they have a different plan.

  • You should all know that if anyone finds a cure for cancer, it would financially wreck the medical system in the US and around the world. Cancer treatment is a big business, a cure for cancer is the death of cancer treatment.

  • Government agencies should not be allowed to have any control over American citizen’s thoughts or beliefs. Especially when it comes to our family’s lives. FDA and big pharma are way out of line and may be considered criminal.

  • I think the FDA should be on trial for what they’ve put Burzynski through all these years. This man is a hero-a national treasure. They should be erecting statues to him-not trying to tear him down. There’s something terribly wrong with the system when, after all the people that have been saved, have to come to his defence. God Bless Dr Burzynski.

  • A renegrade is a person who deserts and betrays . Dr Burzynski is a famous and is brilliant physician who has an excellent record of curing brain blastomas He is not a regrade. He treats without invasive radiation & chemotherapy. I have referred people to him several times. But the FDA does not like him and, similar to other physicians who are using new and successful methods which avoid pharmaceuticals, radiation an/or surgery, the FDA fights them and denegrates them. The methods eschewed by successful functional medicine physicians treats causes, while allopathic physicians treat symptoms. Allopathic is very profitable and the pharmaceutical companies and the FDA, CDC, AMA, etc., don’t want to lose their cash cow….sick USA citizens.

    • Patricia,
      I took my 42-year old daughter to Dr. B. He said he could treat her stage IV breast cancer and 60% chance of a cure. However I asked for documentation, supporting his claims. To date Dr. B not responded. I searched the internet for survivors or breast cancer patients treated by Dr. B and found no usable information. I wish I could find some proof of his work.

    • The people on the boards of FDA, CDC, AMA, NCI, etc. have no integrity. They are corporate thieves of the worst kind. That dying people are forced to sue the FDA to get medical treatment to try to save their own lives shows the evil corruption in these hideously expensive agencies ostensibly there to protect. They attack and destroy innovative, creative, independent, SUCCESSFUL doctors because Medical Agencies are about one thing and one thing only: money and power. Medical error is the 3rd leading cause of death… after heart disease and cancer, and they are trying to imprison a Doctor Burzynski who has invented a very successful cure for cancer? Why? Because this doctor owns the patents of his discoveries and Big Pharma, who owns and operates the lucrative medical/pharmaceutical business in the US, won’t make money, so they want to shut him down. There are many, many people out there who would be dead but for this Dr. Burzynski. Can the doctor/administrators who run those medical agencies make the same claim? Maybe if the doctor/administrators found themselves with a highly malignant, aggressive, inoperable tumor in their brain and two months to live they might have a different take on the situation.

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