Opposition to a congressional bill that would explicitly remove genetic privacy protections from workplace wellness programs grew on Monday, with one of the country’s leading wellness associations calling the proposed changes “punitive.”

The bill, approved by a House committee last week, would eliminate long-standing genetic privacy protections from workplace wellness programs, which are allowed to charge thousands of dollars more in premiums, deductibles, and copayments to employees who do not participate. If passed by the full House and Senate and signed by President Trump, the bill would free employers’ wellness programs from the existing constraints of the landmark Genetic Information Nondiscrimination Act.

Unlock this article by subscribing to STAT Plus. To get you started, enjoy 50% off your first 3 months!

GET STARTED

What is it?

STAT Plus is STAT's premium subscription service for in-depth biotech, pharma, policy, and life science coverage and analysis. Our award-winning team covers news on Wall Street, policy developments in Washington, early science breakthroughs and clinical trial results, and health care disruption in Silicon Valley and beyond.

What's included?

  • Daily reporting and analysis
  • The most comprehensive industry coverage from a powerhouse team of reporters
  • Subscriber-only newsletters
  • Daily newsletters to brief you on the most important industry news of the day
  • Online intelligence briefings
  • Frequent opportunities to engage with veteran beat reporters and industry experts
  • Exclusive industry events
  • Premium access to subscriber-only networking events around the country
  • The best reporters in the industry
  • The most trusted and well-connected newsroom in the health care industry
  • And much more
  • Exclusive interviews with industry leaders, profiles, and premium tools, like our CRISPR Trackr.

Leave a Comment

Please enter your name.
Please enter a comment.

  • This story is DEAD on. I have had a lot of questions that I didn’t get forthcoming about the issue. We are already penalized (or “incentive”) as they say to give up the data.

    The better part are what are they going to do with people like me who have issues but who eat healthy and exercise (within my limits)? What about a BMI where you have developed muscle from exercise? They don’t even look at that.

    Just another way to control you.

  • So, in other words, it’s not just an invasion of privacy and completely non-cost-effective, it’s also often inaccurate? Aside from that, how did you enjoy the theater, Mrs. Lincoln?

    Aetna has already tried testing their employees’ DNA and failed. They claimed it saved money, but as I often say figuratively and now literally, lying is part of wellness vendor DNA. See http://thehealthcareblog.com/blog/2015/12/16/genetic-testing-the-new-frontier-of-wellness-madness/

Your daily dose of news in health and medicine

Privacy Policy