M

aia Majumder was on Twitter earlier this month when she saw a map that terrified her.

The map recorded the number of local newspapers in each county across the United States. Large swaths were shaded light pink, denoting a county that had no local daily newspaper at all. As a record of the decline of the American newspaper industry, it was disconcerting.

But Majumder, a scientist who specializes in mathematical modeling, saw something different in the splotches of light pink: a disaster for infectious disease surveillance.

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Epidemiologists rely on all kinds of data to detect the spread of disease, including reports from local and state agencies and social media. But local newspapers are critical to identifying outbreaks and forecasting their trajectories.

On the map, Majumder saw every county without a local newspaper as a community where health officials and disease researchers could be flying blind.

“We rely very heavily on local news. And I think what this will probably mean is that there are going to be pockets of the U.S. where we’re just not going to have a particularly good signal anymore,” said Majumder, a Ph.D. candidate at the Massachusetts Institute of Technology.

Majumder is a computational epidemiology research fellow at HealthMap, a 12-year-old disease detection project run by researchers from Boston Children’s Hospital. The website uses nontraditional data sources — reports from local news outlets and social media platforms among them — to track global infectious disease activity in real time.

The information HealthMap gathers is used not only by public health authorities, but by researchers around the world who are studying things like the changing geographic distribution of diseases — think Zika — and the impact of climate change on disease patterns, said John Brownstein, one of the co-founders of the site.

“Local media is the bedrock of internet surveillance — the kind of work that we do in terms of scouring the web looking for early signs of something taking place in a community,” explained Brownstein, chief innovation officer at Boston Children’s and a pioneer in the field of using sources other than public health data to do this type of work.

He pointed to the 2009 H1N1 influenza pandemic as an example of a case in which local reporting helped to bring an emerging disease threat to global attention.

“Local media is the bedrock of internet surveillance — the kind of work that we do in terms of scouring the web looking for early signs of something taking place in a community.”

John Brownstein, HealthMap co-founder

The Centers for Disease Control and Prevention was the first agency to detect that two young children in California had been infected with a flu strain circulated in pigs. As officials were trying to figure out if the cases were blips or part of something bigger, however, disease detectives began crawling through recent media reports to determine whether unusual numbers of people with flu-like illness in Mexico had also been sickened by the new virus. It turned out they had been. The new virus was spreading.

“It makes sense that if we see a reduction in local reporting, you’re not going to have that early signaling of something in a community,” Brownstein said.

Without local reporting, it’s also harder to follow an outbreak and assess its progress. Majumder used the example of the massive 2016-2017 mumps outbreak in northwestern Arkansas to illustrate the point.

She and colleagues were trying to figure out why the outbreak was so large — nearly 3,000 cases all told. Had the virus simply found its way into an area with lots of unvaccinated children? Or was something else driving transmission?

That’s the kind of information that is hugely helpful to public health authorities struggling to control an outbreak. But Majumder found she couldn’t easily get her hands on key data; the Arkansas Department of Health issued regular updates, but the agency did not archive previous updates on its website. And in general getting access to official data can be a time-consuming process.

“There is a lot of red tape to get data sharing privileges, even around something as simple as cumulative case counts over time,” she said.

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The Northwest Arkansas Democrat-Gazette, however, was covering the outbreak closely. Its coverage provided important context for Majumder’s research — and was easy for her to access quickly. Some of the paper’s stories noted that the vaccine refusal rate in that region was higher than anywhere else in the state; others made clear disease was spreading in a local community of people from the Marshall Islands who had been vaccinated.

Both those factors proved key in helping public health officials better understand what was driving the outbreak, Majumder said.

The World Health Organization urges countries to augment their official disease surveillance efforts — which draw information from networks of doctor’s offices, hospitals, and public health laboratories — with what’s known as “event-based surveillance,” said Dr. Larry Madoff, editor of ProMED, the Program for Monitoring Emerging Diseases. The internet-based outbreak reporting system — which reports on human, animal, and plant disease outbreaks — operates under the auspices of the International Society for Infectious Diseases.

Event-based surveillance is more informal and relies on systems that pick up on media reports, rumors on social media, and the like. That’s the way news of the 2003 SARS outbreak emerged. Internet chatter about a disease that was sickening and killing people in China made its way to the WHO before Chinese authorities eventually disclosed the existence of an outbreak that had been raging for several months.

“It is well-known that event-based surveillance depends on healthy, local journalism,” said Madoff, who is also director of the Massachusetts Department of Health’s division of epidemiology and immunization. “So it would be a reasonable assumption that the loss of local sources would increase the time required to discover an outbreak.”

Like HealthMap, ProMED casts its net globally. In some countries, there are not many local media sources, or if there are, those news sources aren’t available on the internet. In those places, ProMED has to rely on word-of-mouth — which may become the case in parts of the U.S. as local news outlets are shuttered, Madoff said.

He’s not sure if ProMED is starting to miss things because of the shrinking number of local news sources. “There’s a huge volume of information and we get what we get. So it’s hard to say what we’re missing, necessarily. But I can easily imagine that we might,” he said.

Newspapers, of course, aren’t the only source of local news. But a town that can’t support a newspaper may not have radio and television stations either. Radio and TV stations may not archive their reports online, or those reports may not be archived in print form, meaning their archives are harder to search, Majumder said.

Social media cannot fill the gap created by the declining local news coverage, she and others involved in this type of research argued. “With Twitter … you are picking up a signal, but that signal might not be precise,” said Alessandro Vespignani, a professor at Northeastern University whose research focuses on modeling of epidemics. And social media reports can be simply wrong, he said — either by accident or design. News coverage “anchors” the signals picked up on social media, Vespignani said.

“When you combine data from multiple data sources … including data collected from news alerts, we can gain a better handle on the situational awareness in a given community or country,” agreed Mauricio Santillana, an assistant professor at Harvard Medical School whose research focuses on use of novel data sources to track and forecast disease outbreaks.

Majumder said she and colleagues would like to look at whether the growth of “news deserts” — communities without local news sources — has already had an impact on the amount of data HealthMap has been harvesting from under-covered parts of the United States.

One of the reasons the news desert map scared her, she said, was because she realized many of the places without local papers are also places where voters have been complaining of being left behind.

“What that means is they lose access to news which is very, very vital for knowing what’s going on in your town,” Majumder said. “But also from the public health surveillance point of view, we’re losing access to knowing what they need.”

Correction: An earlier version of this story misstated the name of the Arksansas Department of Health.

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  • I am still finding more information from the STAT Newsletters before I see the information from my professional journals. I think that we are all so much better informed about all types of topics with the newsletters from the STAT reporters. The fact that STAT always has the latest information regarding the current medical frontier in a local news source, would seem to me, a credible reason to subscribe to the news source, that we are all reading at this moment.

  • I love local newspapers. But if epidemiologists aren’t relying on a combination of official public health reports AND a broad search of social media – including the many town-local, demographic e.g. mom-focused, and disease-specific Facebook groups – they need to step up their game. I recall reading about flu-reporting and tracking apps as well.

  • Great article. One point, however: when a developed country relies on newspaper reports for public health reporting and surveillance of outbreaks, it is a major problem. HealthMap should not be relevant in countries with adequate public health infrastructure – newspapers will get their data from hospitals/clinics, and these hospitals/clinics, in 2018, need to be linked into event- and indicator-based surveillance systems through effective public health reporting. ProMed, similarly is extremely valuable, but its role where public health reporting is robust is less clear. They can serve as supplements to spread information beyond regions and to other spheres, but relying on them as primary reporting tools for outbreak surveillance, when that is one of the government’s primary responsibilities, is problematic.

    I agree that the loss of local news is a major problem. But an arguably bigger problem is the loss of public health integration and reporting, forcing us to rely on alternate sources when we have great sources that simply need to be supported through adequate government infrastructure.

    • Love this comment, my thoughts exactly. Having worked as an epidemiologist in state and county health departments, the use of newspaper articles was non-existent due to robust public health reporting by hospitals, clinics, etc. Although a good article, it very much provides the distinction between armchair and shoe leather epidemiology.

  • Interesting. I wouldn’t have guessed anecdotal stories by small town newspapers would be that informative.

    Many small counties still have local health departments and hopefully EMRs further improve reporting.

  • “Some of the paper’s stories noted that the vaccine refusal rate in that region was higher than anywhere else in the state; others made clear disease was spreading in a local community of people from the Marshall Islands who had been vaccinated.”
    Had been vaccinated, or had not been vaccinated?

    • Sorry if that’s unclear. That section of text is meant to describe 2 different groups. There are unvaccinated children in that area, children from families that don’t vaccinate. There is also a large community of Marshall Islanders — and there are lots of young children in the Marshallese community. The Marshallese children were vaccinated. But a lot of them still got mumps. The mumps vaccine is only about 88% protective, and immunity wanes over time.

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