If you can call someone who gets a rare form of cancer lucky, then Deb Graff says she fits the bill.

At age 72, Graff has survived nine years with multiple myeloma, a blood cancer whose life expectancy used to be measured in months.

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  • Thanks for the article. It’s a really good summary of where treatment is for this disease. I was diagnosed in 2012 and the progress since then has been astonishing. As reflected in the article, there’s no cure and the fact that most myeloma patients will die from it is sobering. All of the new therapies on the horizon offer hope, though, and that’s a very important thing for those of us living with the disease.

  • I was diagnosed with MM in July 2008, went thru all the available drugs by Dec 2009. Miraculously the last combo worked long enough for more available drugs, though I’ve not needed them yet. My mother was diagnosed in 1984 died 5 weeks later. I thank GOD for every day.

  • I was diagnosed with Mutiple Myeloma just over 2 years ago. Thankfully Revamid is working for me at the moment. So pleased to be able to read this interesting and informative article.

  • Very good article, keep up the good work. I was diagnosed with smoldering MM 2005. One treatment was available then. When I started treatment in 2014, I joined a clinical trial. I took RVD and had the stem cell. I continue on Revlimid daily and have been in remission for a year now. The cost of meds are free because of the clinical trial. The main issue with me is my immunities. I do get IVIG monthly which helps. Keep up the great progress with this nasty disease.

  • This article has many great articles, I was diagnosed with MM in 2012. Have had many treatments including a Stem Cell Transplant, I’m now on Carfilzamib and Dex twice a week for three weeks then a week Off. This is currently working and I’m very great full, please keep me informed about any more information on MM. Thank you!

  • Cellectar is working with Univ of Wisconsin with conjunctive therapy which is working well. Stage 0ne and stage two testing

  • Thank you for this! I was diagnosed with MM last Fall, and have found this article very illuminating and encouraging.

  • I was thrilled and saddened to read this article. My father was diagnosed with MM in the late 1980’s and received the standard care at the time. He was one of the approximately 50% of MM patients who responded at all to the treatment. He lived 5 1/2 years which was very good for that time. Obviously I wish these treatments had been available for him then, but I am glad to see them now.

  • My dad was diagnosed with MM three years ago. He also had great insurance but since turning 65 and transitioning to coverage via Medicare, my parents are starting to have to think more carefully about the cost of his treatment which is upwards of $25,000/month (as mentioned in the article). Medicare coverage is not as comprehensive as private insurance. This is not limited to MM patients, but it is very sad to think that people have to consider staying alive versus making sure your spouse/family won’t be bankrupted by the costs of your care.

  • A very good article – I was diagnosed with MGUS three years ago and have gone from wanting to know all, to ignoring my steadily progressing light chain info –
    I may never be able to retire, as I realize the necessity of private health care –
    Again a very informative article…

    • Very good article, thank you. I’m fortunate to be responding very well to current Revlimid therapy. As blessed as I am with good response, I have no finances left. I’ve had to relocate 4 times in 3 years since diagnosis. Unable to continue as a cook, my hours and position have been changed repeatedly. I’m struggling now, as cashering hurts my hands and shoulders. Not sure how much longer I can do it. Gave up private insurance working too few hours. Medicaid so far pays, but I’m poorer than I’ve ever been. And don’t see many opportunities for income to increase any. This status of “chronic illness” really reduces the magnitude of this disease, as well as grant money to help patiets. We’re burgundy, not pink🙄

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