Jamie Heywood is a live wire of a man, a thin, energetic mechanical engineer who entered the biotech world after his brother was diagnosed with amyotrophic lateral sclerosis in 1998. Seeing the state of basic science around the disease, he started the world’s first nonprofit biotechnology company, ALS TDI, with his family. From that moment, he was never one to mince words.

So he made his frustration clear when he spoke for the first time publicly about what has been happening to his second company, PatientsLikeMe, which is being forced by a shadowy U.S. regulatory body to unwind an investment by China-based iCarbonX. At the conference where Heywood appeared recently, the Convergence Forum on Cape Cod, the room took on the tenor of a wake as he spoke about the government order.

Unlock this article by subscribing to STAT Plus and enjoy your first 30 days free!

GET STARTED

What is it?

STAT Plus is STAT's premium subscription service for in-depth biotech, pharma, policy, and life science coverage and analysis. Our award-winning team covers news on Wall Street, policy developments in Washington, early science breakthroughs and clinical trial results, and health care disruption in Silicon Valley and beyond.

What's included?

  • Daily reporting and analysis
  • The most comprehensive industry coverage from a powerhouse team of reporters
  • Subscriber-only newsletters
  • Daily newsletters to brief you on the most important industry news of the day
  • Online intelligence briefings
  • Frequent opportunities to engage with veteran beat reporters and industry experts
  • Exclusive industry events
  • Premium access to subscriber-only networking events around the country
  • The best reporters in the industry
  • The most trusted and well-connected newsroom in the health care industry
  • And much more
  • Exclusive interviews with industry leaders, profiles, and premium tools, like our CRISPR Trackr.

Leave a Comment

Please enter your name.
Please enter a comment.

  • I think there is great value in PatientsLikeMe. I have shared some of my experiences here:

    http://cdwscience.blogspot.com/2019/03/updated-thoughts-on-patientslikeme.html

    I don’t know how much it helps, but I kind of wondered why PatientsLikeMe was a for-profit company. Maybe there need to be some more broader discussions (and other people can provide more specific advice than I can). However, if conversion to a non-profit was possible/helpful, I think that could be an interesting conversation.

  • I fully agree with Michael Gilman’s crystal-clear vision of the US carving out its own demise as Biggest Looser. “Homeland Security” is the ultimate paranoidal scapegoat for US policy makers, exercised in stiffling, fear-mongering, brutal slashing of progress. WHEN does that nation realize that collaboration beats exclusion ?????
    It seems that Committee of Full-blown Idiots is more appropriate for CFIUS.

A roundup of STAT’s top stories of the day in science and medicine

Privacy Policy